Yes, counting the weekend before and the weekend after, I have nine days of Spring Break from work. Not that I'm counting, but if I don't say which number day it is, it will get all muddled together and I won't have any idea where I was/am in the grand scheme of my vacation.
I haven't, in all honestly, done a whole heck of a lot while on break, but that's because I don't have to. Yes, I've helped make dinner, washed dishes, done laundry and played with my 8 year old, but not much beyond that.
I don't change out of my sweats and I wear my robe all day. If I go out, I do change my clothes, of course, but if I'm not going anywhere, I see no reason to put myself into clothes I'll just have to end up washing - this way my clothes stay clean.
Thanks to my pain medications, not only am I not in as much pain, but I also have little to no appetite. I'm not complaining, mind you and some people seem worried that I have a suppressed appetite. I am not worried. Ever since I first got sick back in September, I think I have steadily lost weight anyway. And, I promise, I do eat when I get hungry. When I'm not hungry, however, I don't eat just to eat.
It didn't happen right away, I had up until recently, pretty much weighed what I have for quite awhile now and until about a week ago or so, when I finally let the nurse weigh me, discovered I am finally under 150 pounds. Which works for me as I would like to be about 135 or so. My husband would probably like for me to weigh less - but what husband wouldn't want his wife to look and feel good?!
The only good thing about being sick is that I have had to cut down on certain types of foods I love to eat - cheese, red meat and junk food. I still eat these foods, just in lower quantities and not as often. I've also had to stop eating altogether, granola. Which is awful, but my fistula can't output the roughage and I don't need the fiber as much.
I had been thinking about having surgery in early June to have the fistula removed and the abscess taken care of, but have since changed my mind due to the fact that the possibility of losing the remaining 3' of my small intestine and perhaps some of my large too, which I don't want to have happen and have the quality of my life go from what it is now - which is wonderful - to less than wonderful because the likelihood of having to go on TPN - (a liquid diet which is fed through a major vein either in the arm or under the collarbone) which could quite likely cause me to become diabetic. Something I am NOT willing to have possibly happen.
No, I think I'll continue down the rosy path I am currently heading and not change things for now.
Tuesday, March 15, 2011
Saturday, March 12, 2011
As you can clearly see
I have not been blogging every day like I thought I would be. Life has interrupted my blogging schedule (that means work, child, husband, father, etc., etc.) Now that it is Spring Break for me, I thought I would try to sit down and blog, on occasion, especially when the little one (my 8 year old) wasn't also vying for the computer to entertain her little self.
I haven't gone 'public' on here about my current medical situation, one because I've been trying to deal with it since September and two, as I said in my opening paragraph, life has interrupted. What's been going on with me medically is something I hope my worst enemy would never have to go through. It could have ended up being much worse than it is, but it is still bad enough that my life has changed significantly.
I developed (spontaneously I might add) a fistula in early- to mid-September. My condition was originally diagnosed as Cellulitis and my now previous primary care physician did nothing to take care of it, except prescribe antibiotics. Both he and his physician's assistant were thoroughly perplexed by my illness and suggested sending me for an CT scan, but never did.
Within two or three days of seeing him/her a couple of times, the Cellulitis spontaneously exploded during the night, spewing blood and pus on my night clothes and bedding. Of course I didn't notice it because I was asleep, but when I awoke the next morning, I discovered the mess and needless to say, was not very happy. However, I was expecting it to happen sometime soon as the site had developed a little balloon-like sore, and I just knew it was going to explode.
I ended up having a fistulagram, and two other nasty, invasive tests to figure out exactly the size and location of the now known fistula. The tests were awful, painful and very time-consuming. I had to starve myself and ended up throwing up some magnesium because something didn't set right when I took it. I'm sure the magnesium was fine, but I still puked.
About a month or two after the fistula, I was again diagnosed with yet another round of Cellulitis. This time I had a new doctor who, as was the first, befuddled and wasn't sure what to do, but instead of doing nothing but prescribing antibiotics, took action by getting a syringe, a local anesthetic and cut a small opening and extracted some pus, told me it didn't tract down very far and immediately sent me next door for a CT scan. Fortunately, this time I did not have another fistula but rather an abscess.
Now, here it is mid-March, my abscess is still an abscess and the fistula is not better, but it is not worse, either. I now wear two ostomy bags (otherwise known as appliances) to collect liquid waste and pus, and have to change them every three to four days, unless there is a leak. When that happens I have to change them immediately. Otherwise I empty them from the bottom whenever they get full (plastic velcro closure), seal them up and am on my merry way.
No one yet knows the cause of the fistula and abscess, and while most people would have surgery done to take care of them, I am not a good candidate for more surgery. Up til now, I have had 7 major abdominal surgeries (most likely these are the cause of my now medical dilemma). So...life goes on and occasionally I will find myself contemplating surgery to take care of this, but am also afraid that if I do, my quality of life will go from what it is, to less than good.
I could possibly lose the remaining three feet of my small intestine and have to go on what is known as TPN (being fed under my collarbone a liquid supplement) - which means no more food, water or anything delicious, ever again. Sorry, but I love food way too much to give it up entirely. And, the likelihood of becoming diabetic does not sound good either, so right now I am not willing to go under the knife for an eighth time.
I haven't gone 'public' on here about my current medical situation, one because I've been trying to deal with it since September and two, as I said in my opening paragraph, life has interrupted. What's been going on with me medically is something I hope my worst enemy would never have to go through. It could have ended up being much worse than it is, but it is still bad enough that my life has changed significantly.
I developed (spontaneously I might add) a fistula in early- to mid-September. My condition was originally diagnosed as Cellulitis and my now previous primary care physician did nothing to take care of it, except prescribe antibiotics. Both he and his physician's assistant were thoroughly perplexed by my illness and suggested sending me for an CT scan, but never did.
Within two or three days of seeing him/her a couple of times, the Cellulitis spontaneously exploded during the night, spewing blood and pus on my night clothes and bedding. Of course I didn't notice it because I was asleep, but when I awoke the next morning, I discovered the mess and needless to say, was not very happy. However, I was expecting it to happen sometime soon as the site had developed a little balloon-like sore, and I just knew it was going to explode.
I ended up having a fistulagram, and two other nasty, invasive tests to figure out exactly the size and location of the now known fistula. The tests were awful, painful and very time-consuming. I had to starve myself and ended up throwing up some magnesium because something didn't set right when I took it. I'm sure the magnesium was fine, but I still puked.
About a month or two after the fistula, I was again diagnosed with yet another round of Cellulitis. This time I had a new doctor who, as was the first, befuddled and wasn't sure what to do, but instead of doing nothing but prescribing antibiotics, took action by getting a syringe, a local anesthetic and cut a small opening and extracted some pus, told me it didn't tract down very far and immediately sent me next door for a CT scan. Fortunately, this time I did not have another fistula but rather an abscess.
Now, here it is mid-March, my abscess is still an abscess and the fistula is not better, but it is not worse, either. I now wear two ostomy bags (otherwise known as appliances) to collect liquid waste and pus, and have to change them every three to four days, unless there is a leak. When that happens I have to change them immediately. Otherwise I empty them from the bottom whenever they get full (plastic velcro closure), seal them up and am on my merry way.
No one yet knows the cause of the fistula and abscess, and while most people would have surgery done to take care of them, I am not a good candidate for more surgery. Up til now, I have had 7 major abdominal surgeries (most likely these are the cause of my now medical dilemma). So...life goes on and occasionally I will find myself contemplating surgery to take care of this, but am also afraid that if I do, my quality of life will go from what it is, to less than good.
I could possibly lose the remaining three feet of my small intestine and have to go on what is known as TPN (being fed under my collarbone a liquid supplement) - which means no more food, water or anything delicious, ever again. Sorry, but I love food way too much to give it up entirely. And, the likelihood of becoming diabetic does not sound good either, so right now I am not willing to go under the knife for an eighth time.
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